From 458eb709c6d3c7d3e139fc7be5205a43dafa6b25 Mon Sep 17 00:00:00 2001 From: Davsarper <118986872+Davsarper@users.noreply.github.com> Date: Wed, 29 May 2024 10:53:59 +0100 Subject: [PATCH 1/5] Update june agenda and files A first try to create the agenda, I have not being able to preview so there might be errors --- .../2024-06-05-june-meeting/Session.md | 24 +++++ .../discussion-data-access-pysyft.md | 19 ++++ .../discussion-information-governance.md | 44 +++++++++ .../discussion-what-words-to-use.md | 21 +++++ .../discussion-working-groups.md | 21 +++++ .../2024-06-05-june-meeting/index.md | 94 +++++++++++++++---- .../workshop-data-processing-tools.md | 28 ++++++ .../workshop-researcher-registry.md | 24 +++++ 8 files changed, 259 insertions(+), 16 deletions(-) create mode 100644 docs/events/wg_workshops/2024-06-05-june-meeting/Session.md create mode 100644 docs/events/wg_workshops/2024-06-05-june-meeting/discussion-data-access-pysyft.md create mode 100644 docs/events/wg_workshops/2024-06-05-june-meeting/discussion-information-governance.md create mode 100644 docs/events/wg_workshops/2024-06-05-june-meeting/discussion-what-words-to-use.md create mode 100644 docs/events/wg_workshops/2024-06-05-june-meeting/discussion-working-groups.md create mode 100644 docs/events/wg_workshops/2024-06-05-june-meeting/workshop-data-processing-tools.md create mode 100644 docs/events/wg_workshops/2024-06-05-june-meeting/workshop-researcher-registry.md diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/Session.md b/docs/events/wg_workshops/2024-06-05-june-meeting/Session.md new file mode 100644 index 0000000..dfcce47 --- /dev/null +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/Session.md @@ -0,0 +1,24 @@ +# Session Title + +**Leads**: name surname (affiliation) + +## Proposal + +### Summary + +The session is intended to + +The aim is to: +(1) x +(2) x +(3) x + +### Preparation + +No required preparation beyond an open mind! + + + +### Target audience + +No specific target audience in mind - anybody interested! \ No newline at end of file diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-data-access-pysyft.md b/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-data-access-pysyft.md new file mode 100644 index 0000000..e031369 --- /dev/null +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-data-access-pysyft.md @@ -0,0 +1,19 @@ +# Facilitating researcher access to data with PySyft + +**Leads**: Dave Buckley (OpenMined) + +## Proposal + +### Summary + +[OpenMined](https://openmined.org/) will present their [PySyft notebook](https://github.com/OpenMined/PySyft) which allows to "Perform data science on data that remains in someone else's server" + +### Preparation + +No required preparation beyond an open mind! + + + +### Target audience + +No specific target audience in mind - anybody interested! \ No newline at end of file diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-information-governance.md b/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-information-governance.md new file mode 100644 index 0000000..7a7dfee --- /dev/null +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-information-governance.md @@ -0,0 +1,44 @@ +# Do we need an IG working group? + +Breakout discussion + +**Leads**: Amy Tilbrook (UoE) + +## Proposal + +Breakout discussions are open talks around a topic. They are open ended, and while we hope actions and collaboration arise from them, there is no specific output expected by the end of the session. + +### Prompts + +- Is there a perception of lack of IG knowledge in UK TRE community ("an IG black hole"?) +- What support would benefit the community? + +A) Specific IG working group? Thoughts on: +- remit/purpose +- membership +- how it would work + +B) Is IG an element in ALL working groups? (as per previous group days: "working groups need a purpose, as creating and maintaining one takes effort, many people are interested in everything/all groups"). How could this be supported? + + +C) Something else? + +- Previous suggestions for remit of an IG working group: + - "Something around Information Governance and policies" e.g. ISO27001 and also local e.g. University policies + - Advice from contributors for specific issues - + - Aligning strategies for dealing with TRE-specific IG challenges - e.g. AI/ML, commercial access, international access + + +### Summary + +Open discussion on the need of an Information Governance working group, its potential remit and possible members. + +### Preparation + +No required preparation beyond an open mind! + + + +### Target audience + +No specific target audience in mind - anybody interested! \ No newline at end of file diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-what-words-to-use.md b/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-what-words-to-use.md new file mode 100644 index 0000000..e7354ce --- /dev/null +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-what-words-to-use.md @@ -0,0 +1,21 @@ +# New research: language to use when explaining SDEs and TREs to the public + +**Leads**: Emma Morgan (Understanding Patient Data) + +## Proposal + +### Summary + +[Understanding Patient Data](https://understandingpatientdata.org.uk/)(UPD) has recently published their [final report](https://understandingpatientdata.org.uk/what-words-use) on the What Words To Use project with Research Works, which focused on exploring the best language to use when explaining Secure Data Environments and Trusted Research Environments to the public. + +During the event UPD will make a 20 minutes presentation on the project and its results, followed by an open discussion with the community. + + +### Preparation + +No required preparation beyond an open mind! + + +### Target audience + +No specific target audience in mind - anybody interested! \ No newline at end of file diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-working-groups.md b/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-working-groups.md new file mode 100644 index 0000000..5049002 --- /dev/null +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-working-groups.md @@ -0,0 +1,21 @@ +# Working groups discussion and work session + +**Leads**: Working groups leads + +## Proposal + +### Summary + +For the second breakout session (16:00-16:45) existing Working Groups will host breaout rooms on their progress. + +It will be a session to get community feedback, enquiries from new interested members and work or discuss any relevant topics or actions. + +### Preparation + +No required preparation beyond an open mind! + + + +### Target audience + +No specific target audience in mind - anybody interested! \ No newline at end of file diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/index.md b/docs/events/wg_workshops/2024-06-05-june-meeting/index.md index df3b2f0..b863fc1 100644 --- a/docs/events/wg_workshops/2024-06-05-june-meeting/index.md +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/index.md @@ -1,16 +1,78 @@ -# UK TRE Community meeting - June 2024 - -:Date: [Wednesday 5th June 2024](https://arewemeetingyet.com/London/2024-06-05/13:30/UK%20TRE%20Community%20meeting) -:Time: 13:30 - 17:00 (to be confirmed) -:Registration: https://lu.ma/trntu1di -:Location: Online - -## Background - -## Agenda - -### Keynote - -### Community updates - -### Breakout sessions +# UK TRE Community meeting - December 2023 + +:Date: Wednesday 5th June 2024 13:30-17:00 +:Registration: https://lu.ma/trntu1di +:Location: Online +:Slides: +:Recording: + +```{toctree} +:maxdepth: 1 +:hidden: true + +workshop-data-processing-tools +discussion-information-governance +discussion-what-words-to-use +workshop-researcher-registry +discussion-data-access-pysyft +discussion-working-groups +``` + +## Background + +​The UK TRE Community is a community of over 200 people that has grown organically over the last year for anyone interested in TREs, including researchers, operators, information governors, managers and more, from all sectors and disciplines. + +​The core aims of fostering collaboration and sharing of innovative ideas to support the delivery of groundbreaking research with sensitive data have resonated across the UK and beyond. + +​The community has a website, an active mailing list and Slack channel, and runs quarterly events like this for the community to come together, discuss ideas and problems within the TRE space and work collaboratively together on possible solutions and ways forward! + +## Agenda + +| Time | Agenda Item | +| ------------- | -------------------------------------------- | +| 13:30 - 13:45 | Welcome and intro | +| 13:45 - 14:15 | [Crick's TRE: history and approach](#keynote) | +| 14:15 - 14:45 | [Community updates](#community-updates) | +| 14:45 - 14:55 | Break | +| 14:55 - 15:00 | Intro to breakout session 1 | +| 15:00 - 15:45 | Breakout session 1 [(see below)](#session-1) | +| 15:45 - 15:55 | Break | +| 15:55 - 16:00 | Intro to breakout session 2 | +| 16:00 - 16:45 | Breakout session 2 - Working groups [(see below)](#session-2) | +| 16:45 - 17:00 | Wrap up | + +### Keynote + +A talk by Pete Barnsley about the Crick's Institute TRE, its current approach and the history of how it came to be. + +### Community updates + +_A chance for anyone in the community to share quick updates with everyone on the call._ + +The Community Management Working Group will share progress and general updates and next steps. +Working groups leads will then update the community on their progress and present their charters + +This update will mark the start of the official community review period, after which working groups will be formally approved. + + +### Breakout sessions + +Breakout rooms were a mixture of workshops (more structured sessions designed around a particular problem area, focused on moving towards an output) and discussions (less structured sessions to explore general areas of interest within the UK TRE space), as well as open rooms to have general discussions. + +There will be two sessions on the day of 45 minutes each. + +#### Session 1 + +- [](./workshop-data-processing-tools.md) - workshop +- [](./discussion-information-governance.md) - discussion +- [](./discussion-what-words-to-use.md) - discussion +- [](./workshop-researcher-registry.md) - workshop +- [](./discussion-data-access-pysyft.md) - discussion + +#### Session 2 + +For the second breakout session (16:00-16:45) existing Working Groups will host breaout rooms on their progress. + +It will be a session to get community feedback, enquiries from new interested members and work or discuss any relevant topics or actions. + +- [](./discussion-working-groups.md) - discussion diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/workshop-data-processing-tools.md b/docs/events/wg_workshops/2024-06-05-june-meeting/workshop-data-processing-tools.md new file mode 100644 index 0000000..84689d4 --- /dev/null +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/workshop-data-processing-tools.md @@ -0,0 +1,28 @@ +# Data processing tools + +Workshop + +**Leads**: James Friel (University of Dundee), Aida Sanchez (UCL) + +## Proposal + +### Prompts + +- Risk appetite to deposit data in a TRE - What level on de-identification is comfortable for use within a TRE? e.g truncation, pseudo-anonymization +- What do current data processing pipelines look like? And are their pain points in the process? +- What De-identification tools are being used? What has worked? What hasn't? + + +### Summary + +Intro discussion around data processing, de-identification , and cohort building. + +### Preparation + +A general understanding of data anonymisation. +The ICO anonymisation guidance & the ADF (anonymisation decision making framework) may be of interest as a grounding in this. + + +### Target audience + +People who work in data de-identification and data providers for TRES \ No newline at end of file diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/workshop-researcher-registry.md b/docs/events/wg_workshops/2024-06-05-june-meeting/workshop-researcher-registry.md new file mode 100644 index 0000000..646d237 --- /dev/null +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/workshop-researcher-registry.md @@ -0,0 +1,24 @@ +# Researcher Registry Project + +**Leads**: Emily Jefferson (HDR UK) + +## Proposal + +### Summary + +Researcher Registry Project + +HDR is developing a UK-wide standard for a "Safe Person" and also a technical solution to support TREs to be able to see information on Researchers and their organisations to help them make decisions on whether or not a Researcher is "safe". +The registry would also keep a record of which projects researchers have been approved to work on across TREs. + +HDR UK would like input into the current design from the community to ensure that it meets needs. + +### Preparation + +No required preparation beyond an open mind! + + + +### Target audience + +No specific target audience in mind - anybody interested! \ No newline at end of file From 95aa6fa1965d331920d76154207a9516f8fd2652 Mon Sep 17 00:00:00 2001 From: Davsarper <118986872+Davsarper@users.noreply.github.com> Date: Wed, 29 May 2024 11:40:43 +0100 Subject: [PATCH 2/5] Update docs/events/wg_workshops/2024-06-05-june-meeting/index.md Co-authored-by: Simon Li --- docs/events/wg_workshops/2024-06-05-june-meeting/index.md | 3 ++- 1 file changed, 2 insertions(+), 1 deletion(-) diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/index.md b/docs/events/wg_workshops/2024-06-05-june-meeting/index.md index b863fc1..8f0b128 100644 --- a/docs/events/wg_workshops/2024-06-05-june-meeting/index.md +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/index.md @@ -1,4 +1,5 @@ -# UK TRE Community meeting - December 2023 +# UK TRE Community meeting - June 2024 + :Date: Wednesday 5th June 2024 13:30-17:00 :Registration: https://lu.ma/trntu1di From 0e9942a0a56cf0a6828fe9274e38dc1019050a42 Mon Sep 17 00:00:00 2001 From: Davsarper <118986872+Davsarper@users.noreply.github.com> Date: Wed, 29 May 2024 11:40:55 +0100 Subject: [PATCH 3/5] Update docs/events/wg_workshops/2024-06-05-june-meeting/index.md Co-authored-by: Simon Li --- docs/events/wg_workshops/2024-06-05-june-meeting/index.md | 3 ++- 1 file changed, 2 insertions(+), 1 deletion(-) diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/index.md b/docs/events/wg_workshops/2024-06-05-june-meeting/index.md index 8f0b128..7b2d084 100644 --- a/docs/events/wg_workshops/2024-06-05-june-meeting/index.md +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/index.md @@ -1,7 +1,8 @@ # UK TRE Community meeting - June 2024 -:Date: Wednesday 5th June 2024 13:30-17:00 +:Date: [Wednesday 5th June 2024 13:30-17:00](https://arewemeetingyet.com/London/2024-06-05/13:30/UK%20TRE%20Community%20meeting) + :Registration: https://lu.ma/trntu1di :Location: Online :Slides: From a8635ef69ecc7078136b523e078e9efe76952039 Mon Sep 17 00:00:00 2001 From: Davsarper <118986872+Davsarper@users.noreply.github.com> Date: Wed, 29 May 2024 11:41:23 +0100 Subject: [PATCH 4/5] Delete docs/events/wg_workshops/2024-06-05-june-meeting/Session.md --- .../2024-06-05-june-meeting/Session.md | 24 ------------------- 1 file changed, 24 deletions(-) delete mode 100644 docs/events/wg_workshops/2024-06-05-june-meeting/Session.md diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/Session.md b/docs/events/wg_workshops/2024-06-05-june-meeting/Session.md deleted file mode 100644 index dfcce47..0000000 --- a/docs/events/wg_workshops/2024-06-05-june-meeting/Session.md +++ /dev/null @@ -1,24 +0,0 @@ -# Session Title - -**Leads**: name surname (affiliation) - -## Proposal - -### Summary - -The session is intended to - -The aim is to: -(1) x -(2) x -(3) x - -### Preparation - -No required preparation beyond an open mind! - - - -### Target audience - -No specific target audience in mind - anybody interested! \ No newline at end of file From b9972b2f56091633c06d24921d4a0de772652ae1 Mon Sep 17 00:00:00 2001 From: Simon Li Date: Wed, 29 May 2024 11:43:44 +0100 Subject: [PATCH 5/5] pre-commit run -a --- .../discussion-data-access-pysyft.md | 36 ++-- .../discussion-information-governance.md | 85 +++++----- .../discussion-what-words-to-use.md | 40 +++-- .../discussion-working-groups.md | 40 +++-- .../2024-06-05-june-meeting/index.md | 158 +++++++++--------- .../workshop-data-processing-tools.md | 54 +++--- .../workshop-researcher-registry.md | 46 +++-- 7 files changed, 222 insertions(+), 237 deletions(-) diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-data-access-pysyft.md b/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-data-access-pysyft.md index e031369..3caf524 100644 --- a/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-data-access-pysyft.md +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-data-access-pysyft.md @@ -1,19 +1,17 @@ -# Facilitating researcher access to data with PySyft - -**Leads**: Dave Buckley (OpenMined) - -## Proposal - -### Summary - -[OpenMined](https://openmined.org/) will present their [PySyft notebook](https://github.com/OpenMined/PySyft) which allows to "Perform data science on data that remains in someone else's server" - -### Preparation - -No required preparation beyond an open mind! - - - -### Target audience - -No specific target audience in mind - anybody interested! \ No newline at end of file +# Facilitating researcher access to data with PySyft + +**Leads**: Dave Buckley (OpenMined) + +## Proposal + +### Summary + +[OpenMined](https://openmined.org/) will present their [PySyft notebook](https://github.com/OpenMined/PySyft) which allows to "Perform data science on data that remains in someone else's server" + +### Preparation + +No required preparation beyond an open mind! + +### Target audience + +No specific target audience in mind - anybody interested! diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-information-governance.md b/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-information-governance.md index 7a7dfee..22e6d09 100644 --- a/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-information-governance.md +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-information-governance.md @@ -1,44 +1,41 @@ -# Do we need an IG working group? - -Breakout discussion - -**Leads**: Amy Tilbrook (UoE) - -## Proposal - -Breakout discussions are open talks around a topic. They are open ended, and while we hope actions and collaboration arise from them, there is no specific output expected by the end of the session. - -### Prompts - -- Is there a perception of lack of IG knowledge in UK TRE community ("an IG black hole"?) -- What support would benefit the community? - -A) Specific IG working group? Thoughts on: -- remit/purpose -- membership -- how it would work - -B) Is IG an element in ALL working groups? (as per previous group days: "working groups need a purpose, as creating and maintaining one takes effort, many people are interested in everything/all groups"). How could this be supported? - - -C) Something else? - -- Previous suggestions for remit of an IG working group: - - "Something around Information Governance and policies" e.g. ISO27001 and also local e.g. University policies - - Advice from contributors for specific issues - - - Aligning strategies for dealing with TRE-specific IG challenges - e.g. AI/ML, commercial access, international access - - -### Summary - -Open discussion on the need of an Information Governance working group, its potential remit and possible members. - -### Preparation - -No required preparation beyond an open mind! - - - -### Target audience - -No specific target audience in mind - anybody interested! \ No newline at end of file +# Do we need an IG working group? + +Breakout discussion + +**Leads**: Amy Tilbrook (UoE) + +## Proposal + +Breakout discussions are open talks around a topic. They are open ended, and while we hope actions and collaboration arise from them, there is no specific output expected by the end of the session. + +### Prompts + +- Is there a perception of lack of IG knowledge in UK TRE community ("an IG black hole"?) +- What support would benefit the community? + +A) Specific IG working group? Thoughts on: + +- remit/purpose +- membership +- how it would work + +B) Is IG an element in ALL working groups? (as per previous group days: "working groups need a purpose, as creating and maintaining one takes effort, many people are interested in everything/all groups"). How could this be supported? + +C) Something else? + +- Previous suggestions for remit of an IG working group: +- "Something around Information Governance and policies" e.g. ISO27001 and also local e.g. University policies +- Advice from contributors for specific issues - +- Aligning strategies for dealing with TRE-specific IG challenges - e.g. AI/ML, commercial access, international access + +### Summary + +Open discussion on the need of an Information Governance working group, its potential remit and possible members. + +### Preparation + +No required preparation beyond an open mind! + +### Target audience + +No specific target audience in mind - anybody interested! diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-what-words-to-use.md b/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-what-words-to-use.md index e7354ce..2b4e905 100644 --- a/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-what-words-to-use.md +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-what-words-to-use.md @@ -1,21 +1,19 @@ -# New research: language to use when explaining SDEs and TREs to the public - -**Leads**: Emma Morgan (Understanding Patient Data) - -## Proposal - -### Summary - -[Understanding Patient Data](https://understandingpatientdata.org.uk/)(UPD) has recently published their [final report](https://understandingpatientdata.org.uk/what-words-use) on the What Words To Use project with Research Works, which focused on exploring the best language to use when explaining Secure Data Environments and Trusted Research Environments to the public. - -During the event UPD will make a 20 minutes presentation on the project and its results, followed by an open discussion with the community. - - -### Preparation - -No required preparation beyond an open mind! - - -### Target audience - -No specific target audience in mind - anybody interested! \ No newline at end of file +# New research: language to use when explaining SDEs and TREs to the public + +**Leads**: Emma Morgan (Understanding Patient Data) + +## Proposal + +### Summary + +[Understanding Patient Data](https://understandingpatientdata.org.uk/)(UPD) has recently published their [final report](https://understandingpatientdata.org.uk/what-words-use) on the What Words To Use project with Research Works, which focused on exploring the best language to use when explaining Secure Data Environments and Trusted Research Environments to the public. + +During the event UPD will make a 20 minutes presentation on the project and its results, followed by an open discussion with the community. + +### Preparation + +No required preparation beyond an open mind! + +### Target audience + +No specific target audience in mind - anybody interested! diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-working-groups.md b/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-working-groups.md index 5049002..50dbe23 100644 --- a/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-working-groups.md +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/discussion-working-groups.md @@ -1,21 +1,19 @@ -# Working groups discussion and work session - -**Leads**: Working groups leads - -## Proposal - -### Summary - -For the second breakout session (16:00-16:45) existing Working Groups will host breaout rooms on their progress. - -It will be a session to get community feedback, enquiries from new interested members and work or discuss any relevant topics or actions. - -### Preparation - -No required preparation beyond an open mind! - - - -### Target audience - -No specific target audience in mind - anybody interested! \ No newline at end of file +# Working groups discussion and work session + +**Leads**: Working groups leads + +## Proposal + +### Summary + +For the second breakout session (16:00-16:45) existing Working Groups will host breaout rooms on their progress. + +It will be a session to get community feedback, enquiries from new interested members and work or discuss any relevant topics or actions. + +### Preparation + +No required preparation beyond an open mind! + +### Target audience + +No specific target audience in mind - anybody interested! diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/index.md b/docs/events/wg_workshops/2024-06-05-june-meeting/index.md index 7b2d084..d58bd5c 100644 --- a/docs/events/wg_workshops/2024-06-05-june-meeting/index.md +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/index.md @@ -1,80 +1,78 @@ -# UK TRE Community meeting - June 2024 - - -:Date: [Wednesday 5th June 2024 13:30-17:00](https://arewemeetingyet.com/London/2024-06-05/13:30/UK%20TRE%20Community%20meeting) - -:Registration: https://lu.ma/trntu1di -:Location: Online -:Slides: -:Recording: - -```{toctree} -:maxdepth: 1 -:hidden: true - -workshop-data-processing-tools -discussion-information-governance -discussion-what-words-to-use -workshop-researcher-registry -discussion-data-access-pysyft -discussion-working-groups -``` - -## Background - -​The UK TRE Community is a community of over 200 people that has grown organically over the last year for anyone interested in TREs, including researchers, operators, information governors, managers and more, from all sectors and disciplines. - -​The core aims of fostering collaboration and sharing of innovative ideas to support the delivery of groundbreaking research with sensitive data have resonated across the UK and beyond. - -​The community has a website, an active mailing list and Slack channel, and runs quarterly events like this for the community to come together, discuss ideas and problems within the TRE space and work collaboratively together on possible solutions and ways forward! - -## Agenda - -| Time | Agenda Item | -| ------------- | -------------------------------------------- | -| 13:30 - 13:45 | Welcome and intro | -| 13:45 - 14:15 | [Crick's TRE: history and approach](#keynote) | -| 14:15 - 14:45 | [Community updates](#community-updates) | -| 14:45 - 14:55 | Break | -| 14:55 - 15:00 | Intro to breakout session 1 | -| 15:00 - 15:45 | Breakout session 1 [(see below)](#session-1) | -| 15:45 - 15:55 | Break | -| 15:55 - 16:00 | Intro to breakout session 2 | -| 16:00 - 16:45 | Breakout session 2 - Working groups [(see below)](#session-2) | -| 16:45 - 17:00 | Wrap up | - -### Keynote - -A talk by Pete Barnsley about the Crick's Institute TRE, its current approach and the history of how it came to be. - -### Community updates - -_A chance for anyone in the community to share quick updates with everyone on the call._ - -The Community Management Working Group will share progress and general updates and next steps. -Working groups leads will then update the community on their progress and present their charters - -This update will mark the start of the official community review period, after which working groups will be formally approved. - - -### Breakout sessions - -Breakout rooms were a mixture of workshops (more structured sessions designed around a particular problem area, focused on moving towards an output) and discussions (less structured sessions to explore general areas of interest within the UK TRE space), as well as open rooms to have general discussions. - -There will be two sessions on the day of 45 minutes each. - -#### Session 1 - -- [](./workshop-data-processing-tools.md) - workshop -- [](./discussion-information-governance.md) - discussion -- [](./discussion-what-words-to-use.md) - discussion -- [](./workshop-researcher-registry.md) - workshop -- [](./discussion-data-access-pysyft.md) - discussion - -#### Session 2 - -For the second breakout session (16:00-16:45) existing Working Groups will host breaout rooms on their progress. - -It will be a session to get community feedback, enquiries from new interested members and work or discuss any relevant topics or actions. - -- [](./discussion-working-groups.md) - discussion +# UK TRE Community meeting - June 2024 + +:Date: [Wednesday 5th June 2024 13:30-17:00](https://arewemeetingyet.com/London/2024-06-05/13:30/UK%20TRE%20Community%20meeting) + +:Registration: https://lu.ma/trntu1di +:Location: Online +:Slides: +:Recording: + +```{toctree} +:maxdepth: 1 +:hidden: true + +workshop-data-processing-tools +discussion-information-governance +discussion-what-words-to-use +workshop-researcher-registry +discussion-data-access-pysyft +discussion-working-groups +``` + +## Background + +​The UK TRE Community is a community of over 200 people that has grown organically over the last year for anyone interested in TREs, including researchers, operators, information governors, managers and more, from all sectors and disciplines. + +​The core aims of fostering collaboration and sharing of innovative ideas to support the delivery of groundbreaking research with sensitive data have resonated across the UK and beyond. + +​The community has a website, an active mailing list and Slack channel, and runs quarterly events like this for the community to come together, discuss ideas and problems within the TRE space and work collaboratively together on possible solutions and ways forward! + +## Agenda + +| Time | Agenda Item | +| ------------- | ------------------------------------------------------------- | +| 13:30 - 13:45 | Welcome and intro | +| 13:45 - 14:15 | [Crick's TRE: history and approach](#keynote) | +| 14:15 - 14:45 | [Community updates](#community-updates) | +| 14:45 - 14:55 | Break | +| 14:55 - 15:00 | Intro to breakout session 1 | +| 15:00 - 15:45 | Breakout session 1 [(see below)](#session-1) | +| 15:45 - 15:55 | Break | +| 15:55 - 16:00 | Intro to breakout session 2 | +| 16:00 - 16:45 | Breakout session 2 - Working groups [(see below)](#session-2) | +| 16:45 - 17:00 | Wrap up | + +### Keynote + +A talk by Pete Barnsley about the Crick's Institute TRE, its current approach and the history of how it came to be. + +### Community updates + +_A chance for anyone in the community to share quick updates with everyone on the call._ + +The Community Management Working Group will share progress and general updates and next steps. +Working groups leads will then update the community on their progress and present their charters + +This update will mark the start of the official community review period, after which working groups will be formally approved. + +### Breakout sessions + +Breakout rooms were a mixture of workshops (more structured sessions designed around a particular problem area, focused on moving towards an output) and discussions (less structured sessions to explore general areas of interest within the UK TRE space), as well as open rooms to have general discussions. + +There will be two sessions on the day of 45 minutes each. + +#### Session 1 + +- [](./workshop-data-processing-tools.md) - workshop +- [](./discussion-information-governance.md) - discussion +- [](./discussion-what-words-to-use.md) - discussion +- [](./workshop-researcher-registry.md) - workshop +- [](./discussion-data-access-pysyft.md) - discussion + +#### Session 2 + +For the second breakout session (16:00-16:45) existing Working Groups will host breaout rooms on their progress. + +It will be a session to get community feedback, enquiries from new interested members and work or discuss any relevant topics or actions. + +- [](./discussion-working-groups.md) - discussion diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/workshop-data-processing-tools.md b/docs/events/wg_workshops/2024-06-05-june-meeting/workshop-data-processing-tools.md index 84689d4..dadbf20 100644 --- a/docs/events/wg_workshops/2024-06-05-june-meeting/workshop-data-processing-tools.md +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/workshop-data-processing-tools.md @@ -1,28 +1,26 @@ -# Data processing tools - -Workshop - -**Leads**: James Friel (University of Dundee), Aida Sanchez (UCL) - -## Proposal - -### Prompts - -- Risk appetite to deposit data in a TRE - What level on de-identification is comfortable for use within a TRE? e.g truncation, pseudo-anonymization -- What do current data processing pipelines look like? And are their pain points in the process? -- What De-identification tools are being used? What has worked? What hasn't? - - -### Summary - -Intro discussion around data processing, de-identification , and cohort building. - -### Preparation - -A general understanding of data anonymisation. -The ICO anonymisation guidance & the ADF (anonymisation decision making framework) may be of interest as a grounding in this. - - -### Target audience - -People who work in data de-identification and data providers for TRES \ No newline at end of file +# Data processing tools + +Workshop + +**Leads**: James Friel (University of Dundee), Aida Sanchez (UCL) + +## Proposal + +### Prompts + +- Risk appetite to deposit data in a TRE - What level on de-identification is comfortable for use within a TRE? e.g truncation, pseudo-anonymization +- What do current data processing pipelines look like? And are their pain points in the process? +- What De-identification tools are being used? What has worked? What hasn't? + +### Summary + +Intro discussion around data processing, de-identification , and cohort building. + +### Preparation + +A general understanding of data anonymisation. +The ICO anonymisation guidance & the ADF (anonymisation decision making framework) may be of interest as a grounding in this. + +### Target audience + +People who work in data de-identification and data providers for TRES diff --git a/docs/events/wg_workshops/2024-06-05-june-meeting/workshop-researcher-registry.md b/docs/events/wg_workshops/2024-06-05-june-meeting/workshop-researcher-registry.md index 646d237..b4b61ed 100644 --- a/docs/events/wg_workshops/2024-06-05-june-meeting/workshop-researcher-registry.md +++ b/docs/events/wg_workshops/2024-06-05-june-meeting/workshop-researcher-registry.md @@ -1,24 +1,22 @@ -# Researcher Registry Project - -**Leads**: Emily Jefferson (HDR UK) - -## Proposal - -### Summary - -Researcher Registry Project - -HDR is developing a UK-wide standard for a "Safe Person" and also a technical solution to support TREs to be able to see information on Researchers and their organisations to help them make decisions on whether or not a Researcher is "safe". -The registry would also keep a record of which projects researchers have been approved to work on across TREs. - -HDR UK would like input into the current design from the community to ensure that it meets needs. - -### Preparation - -No required preparation beyond an open mind! - - - -### Target audience - -No specific target audience in mind - anybody interested! \ No newline at end of file +# Researcher Registry Project + +**Leads**: Emily Jefferson (HDR UK) + +## Proposal + +### Summary + +Researcher Registry Project + +HDR is developing a UK-wide standard for a "Safe Person" and also a technical solution to support TREs to be able to see information on Researchers and their organisations to help them make decisions on whether or not a Researcher is "safe". +The registry would also keep a record of which projects researchers have been approved to work on across TREs. + +HDR UK would like input into the current design from the community to ensure that it meets needs. + +### Preparation + +No required preparation beyond an open mind! + +### Target audience + +No specific target audience in mind - anybody interested!