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Research projects
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@JanProgrammierung
JanProgrammierung authored Jan 16, 2025
2 parents 70bdef6 + 2848dd5 commit b8e400a
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270 changes: 144 additions & 126 deletions next-app/src/app/accessclinicaldata/page.tsx
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Original file line number Diff line number Diff line change
Expand Up @@ -42,37 +42,53 @@ export default function AboutPage(): ReactElement {
human data is often not freely available. Researchers seeking access
to human data must submit an application outlining their project and
its requirements. The responsible institution, typically a healthcare
region or university, will release the data only after conducting
harm and confidentiality assessments.
region or university, will release the data only after conducting harm
and confidentiality assessments.
</p>
<Title level={2}>Swedish research projects or databases</Title>
<div className="flex flex-row items-center">
<Title level={2}>Swedish research projects or databases</Title>
<Link href="/swedishresearchprojects">
<svg
className="ml-2 fill-primary w-7 h-7"
xmlns="http://www.w3.org/2000/svg"
viewBox="0 0 32 32"
>
<g data-name="19-Arrow Right">
<path d="M16 0a16 16 0 1 0 16 16A16 16 0 0 0 16 0zm0 30a14 14 0 1 1 14-14 14 14 0 0 1-14 14z" />
<path d="m26.71 15.29-7-7-1.42 1.42 5.3 5.29H5v2h18.59l-5.29 5.29 1.41 1.41 7-7a1 1 0 0 0 0-1.41z" />
</g>
</svg>
</Link>
</div>{" "}
<p>
It is possible to request existing data from several research projects or
research databases in Sweden. Projects can be found, for example, on the
website of the project’s entity responsible for the research, the{" "}
<a
href="https://snd.se/en/catalogue/search"
target="_blank"
className="text-primary hover:text-black underline"
>
Swedish National Data Service (SND)
</a>
, or the{" "}
<a
href="https://precision-medicine-portal.scilifelab.se/swedishresearchprojects"
target="_blank"
className="text-primary hover:text-black underline"
>
Precision Medicine Portal
</a>
.
</p>
<p>
In the research data catalogue at SND, it is possible to search for research
projects and data from several disciplines. Some data and metadata can be
downloaded directly from the catalogue. SND also provides information about
data management and a service for data sharing.
</p>
It is possible to request existing data from several research projects
or research databases in Sweden. Projects can be found, for example,
on the website of the project’s entity responsible for the research,
the{" "}
<a
href="https://snd.se/en/catalogue/search"
target="_blank"
className="text-primary hover:text-black underline"
>
Swedish National Data Service (SND)
</a>
, or the{" "}
<a
href="https://precision-medicine-portal.scilifelab.se/swedishresearchprojects"
target="_blank"
className="text-primary hover:text-black underline"
>
Precision Medicine Portal
</a>
.
</p>
<p>
In the research data catalogue at SND, it is possible to search for
research projects and data from several disciplines. Some data and
metadata can be downloaded directly from the catalogue. SND also
provides information about data management and a service for data
sharing.
</p>
<div className="flex flex-row items-center">
<Title level={2}>Quality registries</Title>
<Link href="/registries">
Expand Down Expand Up @@ -181,107 +197,109 @@ export default function AboutPage(): ReactElement {
</a>
</li>
</ul>
<p>
</p>
<p></p>
<Title level={2}>Patient and medical records</Title>
<p>
Healthcare staff document patient interactions, and after a confidentiality assessment,
this information can be requested for medical research by lämna in en begäran om utlämnande av patientdata.
In Sweden, the 21 regions are responsible for most healthcare services, while
municipalities handle services like home care, and private practitioners manage their own records.
Consequently, to conduct research using patient records from across the country, it may be necessary to request data from multiple sources.
Healthcare staff document patient interactions, and after a
confidentiality assessment, this information can be requested for
medical research by lämna in en begäran om utlämnande av patientdata.
In Sweden, the 21 regions are responsible for most healthcare
services, while municipalities handle services like home care, and
private practitioners manage their own records. Consequently, to
conduct research using patient records from across the country, it may
be necessary to request data from multiple sources.
</p>
<Title level={2}>Research data management</Title>
<p>
SciLifeLab provides general research data management (RDM) guidelines,{" "}
<a
href="https://data-guidelines.scilifelab.se/"
target="_blank"
className="text-primary hover:text-black underline"
>
available here
</a>
, and specific information about the ethical, legal, and societal
implications (ELSI) for research involving human data,{" "}
<a
href="https://data-guidelines.scilifelab.se/topics/research-involving-human-data/"
target="_blank"
className="text-primary hover:text-black underline"
>
available here
</a>
. They also offer guidance on{" "}
<a
href="https://data-guidelines.scilifelab.se/topics/sharing-human-data/"
target="_blank"
className="text-primary hover:text-black underline"
>
sharing sensitive human data
</a>
.
</p>
<p>
More information and tailored research support can be found at universities,
colleges, and healthcare regions or hospitals. A selection of links:
</p>
<ul className="list-disc pl-4">
<li>
<a
href="https://www.oru.se/english/research/research-support/"
target="_blank"
className="text-primary hover:text-black underline"
>
Örebro University
</a>
</li>
<li>
<a
href="https://www.oru.se/english/research/research-support/"
target="_blank"
className="text-primary hover:text-black underline"
>
Karolinska University Hospital
</a>
</li>
<li>
<a
href="https://www.staff.lu.se/research-and-education/research-support"
target="_blank"
className="text-primary hover:text-black underline"
>
Lund University
</a>
</li>
<li>
<a
href="https://www.umu.se/en/research-support-and-collaboration-office/"
target="_blank"
className="text-primary hover:text-black underline"
>
Umeå University
</a>
</li>
<li>
<a
href="https://www.uu.se/en/staff/gateway/research/research-handbook/uppsala-universitys-research-support/the-medfarm-research-support"
target="_blank"
className="text-primary hover:text-black underline"
>
Uppsala University
</a>
</li>
<li>
<a
href="https://staff.ki.se/research-support"
target="_blank"
className="text-primary hover:text-black underline"
>
Karolinska Universitetet
</a>
</li>
</ul>
<LastUpdated date="13-01-2025" />

<p>
SciLifeLab provides general research data management (RDM) guidelines,{" "}
<a
href="https://data-guidelines.scilifelab.se/"
target="_blank"
className="text-primary hover:text-black underline"
>
available here
</a>
, and specific information about the ethical, legal, and societal
implications (ELSI) for research involving human data,{" "}
<a
href="https://data-guidelines.scilifelab.se/topics/research-involving-human-data/"
target="_blank"
className="text-primary hover:text-black underline"
>
available here
</a>
. They also offer guidance on{" "}
<a
href="https://data-guidelines.scilifelab.se/topics/sharing-human-data/"
target="_blank"
className="text-primary hover:text-black underline"
>
sharing sensitive human data
</a>
.
</p>
<p>
More information and tailored research support can be found at
universities, colleges, and healthcare regions or hospitals. A
selection of links:
</p>
<ul className="list-disc pl-4">
<li>
<a
href="https://www.oru.se/english/research/research-support/"
target="_blank"
className="text-primary hover:text-black underline"
>
Örebro University
</a>
</li>
<li>
<a
href="https://www.oru.se/english/research/research-support/"
target="_blank"
className="text-primary hover:text-black underline"
>
Karolinska University Hospital
</a>
</li>
<li>
<a
href="https://www.staff.lu.se/research-and-education/research-support"
target="_blank"
className="text-primary hover:text-black underline"
>
Lund University
</a>
</li>
<li>
<a
href="https://www.umu.se/en/research-support-and-collaboration-office/"
target="_blank"
className="text-primary hover:text-black underline"
>
Umeå University
</a>
</li>
<li>
<a
href="https://www.uu.se/en/staff/gateway/research/research-handbook/uppsala-universitys-research-support/the-medfarm-research-support"
target="_blank"
className="text-primary hover:text-black underline"
>
Uppsala University
</a>
</li>
<li>
<a
href="https://staff.ki.se/research-support"
target="_blank"
className="text-primary hover:text-black underline"
>
Karolinska Universitetet
</a>
</li>
</ul>
<LastUpdated date="13-01-2025" />
</div>
</div>
);
Expand Down
58 changes: 39 additions & 19 deletions next-app/src/app/swedishresearchprojects/page.tsx
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Original file line number Diff line number Diff line change
Expand Up @@ -12,6 +12,7 @@ type Project = {
name: string;
link: string;
description: string;
SND?: string; // Optional SND field
tags: {
disease?: string[];
participants: string[];
Expand All @@ -28,6 +29,7 @@ const breadcrumbs: { [id: string]: ILink } = {
const TAG_COLOURS: { [key: string]: string } = {
participants: "bg-[#82AEB2] text-black",
contextual: "bg-[#E9F2D1] text-black",
snd: "bg-[#649ED2] text-black", // Custom SND button colour
};

export default function ProjectsPage() {
Expand Down Expand Up @@ -81,17 +83,12 @@ export default function ProjectsPage() {
{/* Introductory Section */}
<div className="prose prose-lg text-gray-700 text-justify mx-auto mb-12">
<p className="mb-4">
This page highlights 15 selected research projects tied to biobanks,
This page highlights selected research projects tied to biobanks,
showcasing their significant role in advancing scientific research and
medical innovation. These projects, conducted by academic
institutions, healthcare providers, and industry collaborators in
Sweden, address key scientific questions, drive technological
development, and improve healthcare outcomes. By integrating
biological material with comprehensive health data, Swedish biobanks
provide a unique platform for longitudinal studies, translational
research, and precision medicine. These projects demonstrate how
biobank resources bridge the gap between fundamental science and
clinical applications.
development, and improve healthcare outcomes.
</p>
<p>
The information on this page is based on the brochure{" "}
Expand Down Expand Up @@ -151,19 +148,42 @@ export default function ProjectsPage() {
<p className="text-muted-foreground mb-4">
{project.description || "Description not provided."}
</p>
<div className="flex flex-wrap gap-2">
{Object.entries(project.tags).map(
([category, tags]) =>
category !== "disease" &&
tags?.map((tag, i) => (
<span
key={`${category}-${i}`}
className={`px-3 py-1 rounded-full text-sm ${TAG_COLOURS[category]}`}
>
{tag}
</span>
))
<div className="flex flex-col gap-3">
{/* SND Button */}
{project.SND && (
<a
href={project.SND}
target="_blank"
rel="noopener noreferrer"
className={`inline-flex items-center gap-2 px-3 py-1 text-sm font-medium rounded-full text-black ${TAG_COLOURS.snd} hover:opacity-90 self-start transition-opacity duration-100`}
>
SND Metadata
<svg
xmlns="http://www.w3.org/2000/svg"
width="20"
height="20.092"
className="flex-shrink-0"
>
<path d="m12 0 2.561 2.537-6.975 6.976 2.828 2.828 6.988-6.988L20 7.927 19.998 0H12z" />
<path d="M9 4.092v-2H0v18h18v-9h-2v7H2v-14h7z" />
</svg>
</a>
)}
{/* Other Tags */}
<div className="flex flex-wrap gap-2">
{Object.entries(project.tags).map(
([category, tags]) =>
category !== "disease" &&
tags?.map((tag, i) => (
<span
key={`${category}-${i}`}
className={`px-3 py-1 rounded-full text-sm ${TAG_COLOURS[category]}`}
>
{tag}
</span>
))
)}
</div>
</div>
</CardContent>
</Card>
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