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Added license page with the same content as the license file. Also ad…
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…ded link in Footer

Signed-off-by: JanProgrammierung <jan.lorenz@scilifelab.se>
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JanProgrammierung committed Jan 30, 2025
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310 changes: 83 additions & 227 deletions next-app/src/app/license/page.tsx
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Original file line number Diff line number Diff line change
Expand Up @@ -13,7 +13,7 @@ export default function AboutPage(): ReactElement {

const breadcrumbs: { [id: string]: ILink } = {
l1: { text: "Home", classes: "", link: "/" },
l2: { text: "Access clinical data", classes: "", link: "" },
l2: { text: "License", classes: "", link: "" },
};

return (
Expand All @@ -34,272 +34,128 @@ export default function AboutPage(): ReactElement {
</ul>
</div>
<div className="flex flex-col gap-y-4">
<Title level={1}>Access data for precision medicine research</Title>
<p>
Researchers can access human data for research from various national
and international sources, such as research databases, quality
registries, patient or medical records, biobanks, and more. However,
human data is often not freely available. Researchers seeking access
to human data must submit an application outlining their project and
its requirements. The responsible institution, typically a healthcare
region or university, will release the data only after conducting harm
and confidentiality assessments.
</p>
<div className="flex flex-row items-center">
<Title level={2}>Swedish research projects or databases</Title>
<Link href="/swedishresearchprojects">
<svg
className="ml-2 fill-primary w-7 h-7"
xmlns="http://www.w3.org/2000/svg"
viewBox="0 0 32 32"
>
<g data-name="19-Arrow Right">
<path d="M16 0a16 16 0 1 0 16 16A16 16 0 0 0 16 0zm0 30a14 14 0 1 1 14-14 14 14 0 0 1-14 14z" />
<path d="m26.71 15.29-7-7-1.42 1.42 5.3 5.29H5v2h18.59l-5.29 5.29 1.41 1.41 7-7a1 1 0 0 0 0-1.41z" />
</g>
</svg>
</Link>
</div>{" "}
<p>
It is possible to request existing data from several research projects
or research databases in Sweden. Projects can be found, for example,
on the website of the project’s entity responsible for the research,
the{" "}
<a
href="https://snd.se/en/catalogue/search"
target="_blank"
className="text-primary hover:text-black underline"
>
Swedish National Data Service (SND)
</a>
, or the{" "}
<a
href="https://precision-medicine-portal.scilifelab.se/swedishresearchprojects"
target="_blank"
className="text-primary hover:text-black underline"
>
Precision Medicine Portal
</a>
.
</p>
<p>
In the research data catalogue at SND, it is possible to search for
research projects and data from several disciplines. Some data and
metadata can be downloaded directly from the catalogue. SND also
provides information about data management and a service for data
sharing.
</p>
<div className="flex flex-row items-center">
<Title level={2}>Quality registries</Title>
<Link href="/registries">
<svg
className="ml-2 fill-primary w-7 h-7"
xmlns="http://www.w3.org/2000/svg"
viewBox="0 0 32 32"
>
<g data-name="19-Arrow Right">
<path d="M16 0a16 16 0 1 0 16 16A16 16 0 0 0 16 0zm0 30a14 14 0 1 1 14-14 14 14 0 0 1-14 14z" />
<path d="m26.71 15.29-7-7-1.42 1.42 5.3 5.29H5v2h18.59l-5.29 5.29 1.41 1.41 7-7a1 1 0 0 0 0-1.41z" />
</g>
</svg>
</Link>
</div>
<Title level={1}>License</Title>
<Title level={2} className="mt-4">
Website content
</Title>

<p>
The Swedish quality registries aim to improve the health care system
by collecting individualised health data about, for example, certain
diagnoses or problems{" "}
Unless specified otherwise, the content (text and images) of this
website is licensed{" "}
<a
href="https://www.1177.se/sa-fungerar-varden/lagar-och-bestammelser/nationella-kvalitetsregister/#:~:text=I%20nationella%20kvalitetsregister%20samlas%20information,l%C3%A4mnas%20till%20ett%20nationellt%20kvalitetsregister"
href="https://creativecommons.org/licenses/by/4.0/"
target="_blank"
className="text-primary hover:text-black underline"
>
(further information in Swedish)
Creative Commons Attribution 4.0 International License
</a>
. Data from a certain registry can be requested by researchers after
approval by a steering group consisting of health care professionals
and patient representatives.
</p>
<p>
Healthcare providers must inform patients before their medical
information is collected in a quality register. This procedure differs
from the inclusion of a research subject in a study, where written
consent is required. However, personal data cannot be processed in a
quality register or research study if the individual objects. If a
person opposes the processing of their personal data after it has
begun, the information should be erased from the register as soon as
possible{" "}
. This is a human-readable summary of (and not a substitute for){" "}
<a
href="https://www.riksdagen.se/sv/dokument-och-lagar/dokument/svensk-forfattningssamling/patientdatalag-2008355_sfs-2008-355/#K7"
href="https://creativecommons.org/licenses/by/4.0/legalcode"
target="_blank"
className="text-primary hover:text-black underline"
>
(further information in Swedish)
the license
</a>
.
</p>
<p>
Every quality registry in Sweden is connected to one of six centres
that provide support:
</p>

<Title level={3}>You are free to:</Title>
<ul className="list-disc pl-4">
<li>
<a
href="https://qrcstockholm.se/"
target="_blank"
className="text-primary hover:text-black underline"
>
Stockholm (QRC STHLM)
</a>
<strong>Share</strong> — copy and redistribute the material in any
medium or format
</li>
<li>
<a
href="https://rcsyd.se/"
target="_blank"
className="text-primary hover:text-black underline"
>
Syd (RC SYD)
</a>
</li>
<li>
<a
href="https://rcnorr.se/"
target="_blank"
className="text-primary hover:text-black underline"
>
Norr (RCN)
</a>
</li>
<li>
<a
href="https://www.ucr.uu.se/"
target="_blank"
className="text-primary hover:text-black underline"
>
Uppsala Clinical Research Center (UCR)
</a>
<strong>Adapt</strong> — remix, transform, and build upon the
material for any purpose, even commercially.
</li>
</ul>
<p>
The licensor cannot revoke these freedoms as long as you follow the
license terms.
</p>

<Title level={3}>Under the following terms:</Title>
<ul className="list-disc pl-4">
<li>
<a
href="https://registercentrum.se/rc-vast/vastra-gotaland"
target="_blank"
className="text-primary hover:text-black underline"
>
Västra Götaland
</a>
<strong>Attribution</strong> — You must give appropriate credit,
provide a link to the license, and indicate if changes were made.
You may do so in any reasonable manner, but not in any way that
suggests the licensor endorses you or your use.
</li>
<li>
<a
href="https://registercentrum.se/rc-sydost/sydost"
target="_blank"
className="text-primary hover:text-black underline"
>
SydOst (RCSO)
</a>
<strong>No additional restrictions</strong> — You may not apply
legal terms or technological measures that legally restrict others
from doing anything the license permits.
</li>
</ul>
<p></p>
<Title level={2}>Patient and medical records</Title>

<Title level={3}>Notices:</Title>
<p>
Healthcare staff document patient interactions, and after a
confidentiality assessment, this information can be requested for
medical research by lämna in en begäran om utlämnande av patientdata.
In Sweden, the 21 regions are responsible for most healthcare
services, while municipalities handle services like home care, and
private practitioners manage their own records. Consequently, to
conduct research using patient records from across the country, it may
be necessary to request data from multiple sources.
You do not have to comply with the license for elements of the
material in the public domain or where your use is permitted by an
applicable exception or limitation.
</p>
<Title level={2}>Research data management</Title>
<p>
SciLifeLab provides general research data management (RDM) guidelines,{" "}
<a
href="https://data-guidelines.scilifelab.se/"
target="_blank"
className="text-primary hover:text-black underline"
>
available here
</a>
, and specific information about the ethical, legal, and societal
implications (ELSI) for research involving human data,{" "}
No warranties are given. The license may not give you all of the
permissions necessary for your intended use. For example, other rights
such as publicity, privacy, or moral rights may limit how you use the
material.
</p>

<Title level={2} className="mt-4">
Software
</Title>
<p>
Except where otherwise noted, any software in this repository are made
available under the{" "}
<a
href="https://data-guidelines.scilifelab.se/topics/research-involving-human-data/"
href="https://opensource.org/"
target="_blank"
className="text-primary hover:text-black underline"
>
available here
OSI
</a>
. They also offer guidance on{" "}
-approved{" "}
<a
href="https://data-guidelines.scilifelab.se/topics/sharing-human-data/"
href="https://opensource.org/licenses/mit-license.html"
target="_blank"
className="text-primary hover:text-black underline"
>
sharing sensitive human data
MIT license
</a>
.
</p>

<Title level={3}>For the rest of the code</Title>
<p>Copyright (c) 2025 SciLifeLab Data Centre</p>

<Title level={3}>The MIT License (MIT)</Title>
<p>
More information and tailored research support can be found at
universities, colleges, and healthcare regions or hospitals. A
selection of links:
Permission is hereby granted, free of charge, to any person obtaining
a copy of this software and associated documentation files (the
"Software"), to deal in the Software without restriction, including
without limitation the rights to use, copy, modify, merge, publish,
distribute, sublicense, and/or sell copies of the Software, and to
permit persons to whom the Software is furnished to do so, subject to
the following conditions:
</p>
<ul className="list-disc pl-4">
<li>
<a
href="https://www.oru.se/english/research/research-support/"
target="_blank"
className="text-primary hover:text-black underline"
>
Örebro University
</a>
</li>
<li>
<a
href="https://www.oru.se/english/research/research-support/"
target="_blank"
className="text-primary hover:text-black underline"
>
Karolinska University Hospital
</a>
</li>
<li>
<a
href="https://www.staff.lu.se/research-and-education/research-support"
target="_blank"
className="text-primary hover:text-black underline"
>
Lund University
</a>
</li>
<li>
<a
href="https://www.umu.se/en/research-support-and-collaboration-office/"
target="_blank"
className="text-primary hover:text-black underline"
>
Umeå University
</a>
</li>
<li>
<a
href="https://www.uu.se/en/staff/gateway/research/research-handbook/uppsala-universitys-research-support/the-medfarm-research-support"
target="_blank"
className="text-primary hover:text-black underline"
>
Uppsala University
</a>
</li>
<li>
<a
href="https://staff.ki.se/research-support"
target="_blank"
className="text-primary hover:text-black underline"
>
Karolinska Universitetet
</a>
</li>
</ul>
<LastUpdated date="13-01-2025" />
<p>
The above copyright notice and this permission notice shall be
included in all copies or substantial portions of the Software.
</p>
<p>
THE SOFTWARE IS PROVIDED "AS IS", WITHOUT WARRANTY OF ANY KIND,
EXPRESS OR IMPLIED, INCLUDING BUT NOT LIMITED TO THE WARRANTIES OF
MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE AND NONINFRINGEMENT.
IN NO EVENT SHALL THE AUTHORS OR COPYRIGHT HOLDERS BE LIABLE FOR ANY
CLAIM, DAMAGES OR OTHER LIABILITY, WHETHER IN AN ACTION OF CONTRACT,
TORT OR OTHERWISE, ARISING FROM, OUT OF OR IN CONNECTION WITH THE
SOFTWARE OR THE USE OR OTHER DEALINGS IN THE SOFTWARE.
</p>

<LastUpdated date="30-01-2025" />
</div>
</div>
);
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1 change: 1 addition & 0 deletions next-app/src/components/FooterComponent.tsx
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Original file line number Diff line number Diff line change
Expand Up @@ -30,6 +30,7 @@ export default function FooterComponent(): ReactElement {
l5: { text: "About us", classes: LINK_CLASSES, link: "/about/product" },
l6: { text: "Contact", classes: LINK_CLASSES, link: "/contact" },
l7: { text: "Privacy policy", classes: LINK_CLASSES, link: "/privacy" },
l8: { text: "License", classes: LINK_CLASSES, link: "/license" },
};

const svgs: { [id: string]: ISVG } = {
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